Pain isn’t something to just “get through” or hide, and it’s definitely not something to be ashamed of. But endometriosis pain is often dismissed or ignored, and many people living with endometriosis in the United States suffer in silence without the support they need.ii,iii
Endometriosis, or endo, is a disease where the tissue that forms the inside lining of the uterus grows where it doesn’t belong — sometimes on the ovaries, fallopian tubes and other organs found in the pelvic area — which can cause chronic pain.i
This out-of-place tissue can shed and bleed, just like your uterine lining does when you get your period, which can cause swelling and period pain or cramping, as well as pain throughout the month and during sex.i Other symptoms may include heavy periods, constipation, nausea, diarrhea and fertility issues.i,iv
Endo can affect day-to-day life beyond period pain — from missed work and school to lost time with loved ones and financial issues.v,vi At the same time, endo symptoms are often dismissed as “normal,” and it can take as many as 10 years for some people to get diagnosed.ii,iii, vii,viii
We’re here to help inspire conversations about endo that lead to real, positive and sustainable change - starting with you. Whether you have endo or endo symptoms, we want to hear about your experience. What you share will help us create a program that we hope will eliminate endo-related stigma or shame, amplify your voices and address the many challenges of endo.
Taking just 10 minutes to share your experiences in our short survey will help us work to change what it means to live with endo by building a better future where people with endo or endo symptoms are heard, believed and supported.
We can’t succeed without you and hope you’ll join us.TAKE
Your answers will help us create solutions that we hope will improve the lives of people with endometriosis. We hope you’ll consider sharing your endometriosis story on social media to let others who may be suffering know they are not alone. #LetsEndoThePain
The Alliance for Endometriosis is a group of organizations with a single goal: to improve the lives of people with endometriosis. Together, we hope to eliminate stigma and encourage more open and productive conversations that lead to faster diagnoses and improved treatment experiences. If you have endometriosis or endometriosis symptoms, we want you to be heard, believed and supported.